but we don't really have the consent-at-scale technology for anything else, do we? tbh it's just this specific NHS Trust that made the call in this instance.
Personally, I see potential in ResearchKit to solve the consent problem re medical data
ResearchKit may be part of the solution for some things, although the auth and data management will be barriers for commercial providers for the near future.
I have a small team that is working with leaders in the space[1] to help many of the major EMR vendors support an open-standards based approach to medical record sharing.
We'll be seeking public feedback when some of the preliminary work is ready, but are very excited to get input from the community as we make progress.
Hi Hal I thought the article should have compared and contrasted with other government run large data sharing programs such as CMS qualified entity or AHRQ HCUP.
thanks for the comment. This would be interesting, but not sure it would have made sense to pack it into one article that is already heavy with data terminology for a lay reader.
Will definitely be looking into healthcare data more, as this story has resulted in some interesting leads
Hello. I am one of the authors. We are on the record saying that we want a real debate.
See: http://uk.businessinsider.com/deepmind-royal-free-london-nhs... https://www.theregister.co.uk/2017/03/16/googles_deepmind_an... http://www.bbc.co.uk/news/technology-39301901